Enjoying the Small Things

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Bookends.

January 12, 2011 By Kelle

It’s a good day when the front door looks like this.

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This means the mail was good to us today. Like a box from Grandma Krissy. And packages with handwritten messages and thick paper envelopes that crumple delightfully when you squeeze them. Being that we are all shameless mail-lovers, when we see the mail lady get out of her truck, signaling a walk to the door for packages bigger than our little box can hold, it turns into a scene much like the alligator feeding frenzy at the zoo. We go bananas. Lainey once followed me out into the driveway naked, running, screaming. And then, because we are so excited, we don’t even make it much past the front door. Or take the time to look for scissors. I, in some animalistic satiation of getting to the prize, rip plastic tape with my teeth while Lainey rifles through bubble wrap and tissue paper like a mad bone-digging dog. And no matter what’s inside those boxes, there is happiness. There is squealing. There is the joyful proclamation of contents. “A book! A hat! A new part for the microwave!”

Today, there was a hat. A happy yellow hat my mama made for me.

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And homemade sweaters for the girls that feel cold and heavy, like the perfect quilt. It was a very good mail day.

And Nella got her own pair of Nella Cordelia Mary Janes from Pitter Patter (all proceeds of the sale of this shoe go to The ONEder Fund).

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Yes, a very good mail day indeed.

Also, another shop, The Meg Shop is offering 50% of the proceeds of Nella’s ONEder Fund bracelet to go The ONEder Fund. Me loves me some shoppin’ for a good cause.

The weather’s been a little wishy-washy, and I like it. Keeps me on my toes. I like waking up to the hissing of the coffee pot and shuffling outside holding both a hot cup and a bit of curiousity as to what’s in store. Flip flops or boots? Hats or tank tops? One day we’re suitin’ up for the pool, the next layering tights and sweaters for chilly winds and the promise of late night plumes of thick, delicious smoke from our chimney. Today was the latter.

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We escaped this chilly morning, to the back of our neighborhood, where we climbed a fence to sneak into our favorite park.

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Photos courtesty of Daddy

I wondered why I don’t do this every morning even though I know that’s a bit unrealistic. We need the balance of staying in our pajamas too long, dropping oatmeal-ed spoons on the carpet and remembering we left wet clothes in the washer overnight to make mornings like these more enchanting.

I felt small, in a good way, among this intricate web of slash pines that swallowed us like boats that disappear along the mysterious space where sea meets sky. We noticed everything–velvety cattails, cold red berries, prickly puffs of tiny dried blooms that danced in the wind.

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Starting your day like this? It’s like the blast of the gun that triggers the screeching of tires at the Indy 500. You can’t help but move forward.

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We need the push. There’s lots to do. Nella’s party is under way. It’s no secret I love parties, especially when it’s the celebration marking the day I held out my arms to grasp the slippery little bodies that would change my world. I may go big with details as I enjoy every bit of making it special, but we do very well at keeping cost low. I’d love to share more creative ideas on the blog on how to inexpensively make magical moments for your littles…will try to find more ways of doing that this year without overload. For now, a little peek into the party planning.

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Found one of my favorite party shops HERE. Retro dime store notions…small dollah, no hollah.

And we’re happy to welcome back another fabulous sponsor, Elizabeth St., who’s supplied us with some more of our favorite treats for Nella’s party…whimsical pinwheels.

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Lots more goods there to check out including beautiful handmade headbands and pins. Check it. Use coupon code ENJOY10 to get 10% off your entire order.

Of course all work and no play makes Jack a very dull boy. Wait, did I slaughter that? That doesn’t rhyme. Is that really how it goes? Whatever. Anyway, after running in to the pediatrician’s for a catch-up on Nella’s shots (who, for the record, didn’t make a peep. Just puckered up in the biggest, sweetest pouty lip in the history of mankind), on the way home Starbucks hot cocoa called me like the sirens of Titan. And if you give a girl a hot chocolate, she’s going to ask for the perfect pale pink speckled donut to go with it.

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From this day forward, I hereby swear never to serve hocho again unless it is heaped with whipped cream and drizzled with rich chocolate. Seriously.

And, as any other crazy day that begins with loveliness, it must be bookended–concluded with loveliness to match its beginning.

Two jammied sisters, desperately in love, playing in the crib together did the job.

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Our P.T. would love this…her little upper body strength is rockin’ the crib bar pull-up.

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But therapy takes a back seat to the real reason I love this time. I caught it–the magical glance of my beautiful spirited three-year-old and my sweet soulful almost-one-year-old. I caught a glimpse of their love like a firefly in a glass.

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Bookend THAT, Baby.

Thank you again and again (it will keep comin’) for what you are doing out there with The ONEder Fund and these beautiful children. It is amazing where this has gone…where this is going. Powerful. And you know what I love about all of it? While there have been some amazing generous larger donations, most of this is from little bits. Five dollars. Ten dollars. Twenty. It DOES matter. Every voice matters. Look what it’s done. This whole fundraiser has been such delicious icing on an otherwise completely fulfilling cake of a year. It’s taught me more about how capable each and every one of us truly is. And I thank you for that.

“Sometimes grace manifests as synchronicity-its energy brings together people or events in a soothing, helpful, or dramatic way when you most need it and least expect it. At other times grace is the energy that suddenly illuminates us with understanding, allowing us to see what we had not been able to grasp before. Grace can also lift us into an altered state of consciousness in which we feel suffused by an unfamiliar energy -an indescribable combination of love, hope, and fearlessness.” ~Caroline Myss

Thank you again, KC, for sharing a quote that is, without fail, what I’m hoping to convey.

Much love tonight. Something good coming for Friday. I think you’re gonna like it.

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Filed Under: Uncategorized 170 Comments

Thank you.

January 11, 2011 By Kelle

I have the usual smattering of photos tonight. And the corresponding stories that string together the trivial nothingness of loungey mornings, alphabet puzzle afternoons and Elmo bubble bath nights.

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But diving into our cherished mundane without first acknowledging this beautiful thing that’s happening right now wouldn’t be right.

I don’t even know what to say. I thought $15,000 would be grand. And look where it’s going. I feel hopeful and connected, motivated and humbled. And this crazy rush to keep going. Like when you lace up your tennis shoes to run two blocks and find that twelve blocks, an adrenaline rush and a victorious smile later you’ve decided you’re going to run a marathon. And then you do.

If what I say resonates with you, it is merely because we are both branches of the same tree.
W.B. Yeats

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Perhaps it is that in itself that amazes me so much. That sense of community–that you all care, that you’re all clicking to watch that bar inch up the graph with us, that this is not our fundraiser but yours. And that’s exactly what I hoped for.

This belongs to a whole lot of families. And it’s not over.

Thank you, Friends. Thank you for your words I have wept over. Thank you not only for making meaningful donations and spreading the news, but thank you for seeing what we see. Thank you for knowing these families are lucky and blessed. Because that’s where it begins. Recognized potential.

Kind of like the potential you saw in a ‘lil ‘ol $15,000 goal. Let’s run a marathon, shall we?

Please continue to share the word.

And how do I proceed without seeming completely jolting?

I’ll soften the blow first.

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There. That’ll do.

I’m in an interesting place right now. Ridiculously busy and juggling a mess of balls, and at the same time reflecting a whole heck of a lot on this crazy year. One year ago, right now, I was here.

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I want to remember all of it. I want it to hurt and, at the same time, I want it to feel good, if that makes any sense. I’ve organzied a lot of meaningful to-dos next week. And I’m so very excited for what it’s all going to mean.

Mostly though, I’m just feeling a whole lot of love.

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Our evening fire Florida chill has faded this week, replaced by the kind of weather that makes you say cheesy things to the neighbors when you’re taking out your trash…like “Pretty gorgeous day, eh?”

It’s always pleasantly ironic to see swimsuits drying on tree knots while somewhere, not far away, mittens dry over hissing heating registers.

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This one’s growing gills like her sister. If she hears bathwater, she instinctively starts paddling toward the tub. And pools? Fuhget about it.

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Lainey’s really into bringing her own grocery cart to the store with me lately. It’s the funniest thing. She looks like a miniature mom, picking up packages and pretending to read the price before chucking it in her little plastic piece-of-crap-on-wheels.

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SWIPER in action. It’s her nickname. Wanna see?

Notice the way she’s eyein’ Lainey’s chalk all subtle like in the right hand corner.

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…and makes her move when Sister’s out of sight…

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…enter her signature swipe…

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And there you have it. Swiper scores.

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Finished this evening with a relaxing bath. Only Lainey’s Barbie head was creepin’ me out with her bug-eyed stare.

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Ever heard of Yuzu? It smells divine. All grapefruity and citrusy. I think Barbie wanted to steal my new bath products.

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Heal My Sole Natural body products (homemade!)

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I’m happy to welcome returning sponsor, Loving Shop. Handmade Tutus which Lainey happens to love.

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Lainey’s wearing Fall Skies Tutu.

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Nice little Valentine’s Day treat, eh? Since Lainey’s ballet teacher once wore a real Nutcracker-ish tutu for class one day, Lainey’s been obsessed with anything that looks like it. Hence the frequency of tutu wearing around the house lately.
Check ’em out. And, for the next two weeks, 10% of all shop proceeds will go to…yup, you guessed it. The ONEder Fund.

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So that is it tonight, my friends.

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Thank you again, for everything you are doing to help rock the ONEder Fund. I’ve seen your blogs, I’ve read your Facebook statuses. You’re putting effort into this…and that makes it your race to the finish line too. It’s amazing, really. And thank you to all the new Facebook friends I’ve made this week! Welcome aboard. If I could bake a batch of cookies in Farmville, I would…and serve them to you with a “Nice to meet y’all.” But I’ve never been to Farmville.

Oh, one more thing. The Pitter Patter Shop has some precious handmade shoes and booties, and ALL the proceeds from the Nella Cordelia Mary Jane Bootie will be goin’ to the ONEder Fund, so head on over to check them out!

And Happy Monday!

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Filed Under: Uncategorized 198 Comments

Pay It Forward…Rock the ONEder Fund.

January 8, 2011 By Kelle

In two weeks, we will celebrate an epic day.

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And my heart is twisting in all sorts of beautiful ways just thinking about it, but mostly it is throbbing with love.

Any attempt at threading words to just how funny, how spirited, how healing her existence is…well it seems so small and unworthy. But, I’m used to that. Her sister’s had me slayed from the start.

I can tell you this though.

I have changed. My eyes have been opened to the broad spectrum of beauty, the value of uniqueness and the amazement of the common thread that binds us all regardless of the color of our skin or the makeup of our chromosomes.

How could I not have been aware of their magic?

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I am grateful for the pain that propelled me forward this year for without it, I wouldn’t have known the joy of this place.

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When I sat down to write this post earlier this afternoon, I intended to make this about Nella. But, I’ve learned something more this year. I’ve learned to look beyond. While yes, the rawness of loving my own child and imagining her almond eyed, milky-cheeked, tiny-toothed grin on the face of every other child with Down syndrome is what initiated my purpose in this new world, it has become more. I care not just because my daughter personally connects me to this greater world but because I have learned to see their hearts, their capabilities, their spirit, their determination, their love.

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And I want you to see it too. Beyond Nella. The faces of these children brighten the worlds of so many lucky families every day. And as I checked my e-mail earlier this evening after a quick Facebook photo all-call, tears rolled down my cheeks at the response. My e-mail alert chirped a continuous rhythm as pictures rolled in, and I couldn’t determine what was more powerful–the faces of these beautiful babies or the words you attached to them in a desperate plea to express a fraction of how you feel.

The love of our lives. She changed me. Our joy boy. The heart of our family.

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So, here’s the deal.

I’m going to ask you for something. And it’s really important to me. To a lot of people.

I’m going to ask you to think about what you’ve taken from this space this year. I have felt incredibly inspired by not only the feeling of community here but by this productive push toward good that arises simply from the understanding of the power of a group of people connected in a small way on the Interweb but, more importantly, in a much greater way within this vast world. And so, I’m asking you again, have you gained anything from visiting this space this year? A smile, a thought, a connection, the encouragement to dig deeper or let your own voice speak out. If you have, I’m asking you to give back today. Please, pay it forward.

In honor of our girl’s first year, we are asking you to give back to her. And the 400,000 other individuals living with Down syndrome in the United States alone.

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The mission of the NDSS is to create a culture that fully accepts and includes individuals with Down syndrome.

Let me say that more clearly. The mission of the NDSS is to create a culture that fully accepts and includes our little girl. Our Nella.

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Last year, the NDSS helped Annie Clancy, a Connecticut high school student, get closer to her dream of becoming a clothing designer when they gave her the once-in-a-lifetime chance to join designer Anya Cole in her studio to learn how to design and produce clothing. Without the NDSS, Annie wouldn’t have known what it felt like to strut her fabulousness down the runway of a fashion show in a posh SoHo loft.

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Or how about Sara Wolff? A skilled motivational speaker, she serves on the NDSS Board of Directors and actively promotes Down syndrome awareness and understanding through personal appearances and inspirational speeches to educators, employers and community professionals. She is loving what she’s doing. She’s doing something amazing with her one wild and precious life. Not to mention, she got to meet Barbara Walters and Meredith Viera which is more than I can say. As Sara says, “I feel good knowing I can inspire people and make a difference.”

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I want my little girl to have these opportunities, and I’m just one of many mamas who share this dream.

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I’ve set a scary goal. $15,000, People. (Actually, I’m editing this after 12 hours into the fundraiser, I’m doubling it, yikes! $30,000.) Editing this AGAIN about 2 days into it. $47,000. Yup, $47 grand for 47 grand chromosomes!) Alright, I’m back. 4 days, and our goal is now $63,000. That’s 21 x 3. Three beautiful little 21st chromosomes, that’s what. And I’m a little nervous about it. But, I believe you care. I believe we can make a difference together. If every Follower–a fraction of readers–gave only $5, we could raise $45,000. Forty Five Thousand Dollars to help change the world into a place that sees the beauty and potential of the magic of these amazing individuals.

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I want this life-changing year to mean more. I want to hold hands with my family in two weeks and know, when we sing “Happy Birthday Dear Nella” and watch her pat her tiny palms into sweet frosting, that something greater is in store.

For everyone.

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Please. Give Nella a birthday gift. Help her give back to her friends.

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If a magazine costs $5, think of how you’ll feel if you spent that instead right here.

Pay it forward. Help us give Nella a very happy birthday.

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Nella’s shirt and sweater used to be dresses. They were her coming-home-from-the-hospital outfit. Sweater, crocheted by my mama

Giving is easy. Click on any link to Nella’s ONEder Fund on this page (the easiest being the large banner at the top of the blog which will remain until Nella’s birthday.)

Spread the word. E-mail it. Facebook it. Tweet it. Blog it.
Together, I’m certain we can move mountains.

Give $5. Or give more. But know, you are appreciated and you are making a difference.

Thank you for your support, your love, your joining with us to make something grand of our one wild and precious life.

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And thank you to all the mamas out there who shared their magically enhanced little beauties with me tonight.

Filed Under: Designer Genes, Favorites 532 Comments

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