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A Tale of Two Vacationers

March 21, 2016 By Kelle

It was the best of times, it was the worst of times… Why yes. Yes I did just start this with a horrendously overused Dickens quote. But the title–it matched.

We’re talking vacation. Best in that time off, perfectly packed suitcases, planned adventures, and all these little dreams of sun and water and skipping across beaches without a care in the world is what we live for, right? Worst in that vacationing with kids might actually be harder than living with kids. Or as Brett so eloquently put it on the beach the other day as Dash flung sand across a 6-yard radius, Nella collapsed crying and we calculated how much time we had to scout out a family-friendly lunch spot before the kids’ low blood sugar demons emerged from their holes: “What about this trip is supposed to be relaxing?”

And I, the rainbow unicorn of the family, pointed out six things about the situation that are awesome because that’s what I’m annoyingly programmed to do: “But they’re making such great memories (1)! And it’s good for us to get away together (2). And the kids will sleep so great tonight (3)! Plus we’re teaching our kids to explore and enjoy their world (4). And Nella–you know these experiences are so good for her (5). And look at this sky, it’s gorgeous, this is so much fun–just ride the wave, Brett (6)! At which point, I’m certain he imagined a great white flinging himself on shore and dragging me out to sea.

The thing is, we are two completely different vacationers. Brett ‘s like—wait, what’s super chill and relaxed? Bob Marley? Half-conscious Bob Marley? Bob Marley passed out in bed with ear plugs? Yes that. Wait, Heidi’s in my kitchen and pointed out that I can’t say Bob Marley because people are going to think Brett’s “smoking reefers.”

“Maybe make a point to say that’s not why Brett’s so chill,” she suggests. “How about Brett’s Bob Marley minus the reefer?” But then Bob Marley’s not so relaxed then, is he? Let’s go with Enya. Brett is Enya. This is terrible, my analogy game is going to the dogs. Let’s just keep it simple: Brett is chill.

Me? I’m a bit more of an “AT DAWN, WE RISE!” kind of vacationer. I treat the places we visit like the people I meet: I want to know you. Not surface here’s-the-postcard-version-of-me, but your real story. What’s your history? Show me your colors, your secret coffee shops, the things you’re most proud of, the corners you keep hidden. You don’t get to know a city watching movies in a rented house. No! You get to know a city by packing up the car at dawn and driving to all the destinations—with the windows down and the wind in your hair.

I’m aware I made my vacation mode sound superior, so now I’ll give Brett’s some love to be fair: Imagine getting away from busy day-to-day life in search of peace only to be met with a busy day-to-day vacation. Plus everybody loves Bob Marley, so he totally has that.

This is the Dichotomy of Us, on vacation, in life. Early Riser marries Night Owl. Set Sail meets Anchor at the Dock. It is the death of us, it is the LIFE of us. When the chain of my Yin bike has broken because I pedaled too damn hard and fast, his Yang bike pulls up and I hop on. In case you were wondering, and since I’m a visual person–his Yang bike looks like this. Go ahead, click on it. Didn’t know biking could be so relaxing, did you? Brett would like to add that his bike also has a cooler and a big screen TV bungee-corded to the front.

“But then how are you going to see where you’re going?” I ask.
“It pops up when you stop at the park to rest,” he adds. Of course. Rest stops. I should have known.

A lengthy prologue and wayward digression from the whole point of this post–our spring break trip to Tampa.

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So how does one do a family vacation then when you mix a Sit, Stay, Sleep parent with a Go, See, Conquer one? The same way we do life–with frustration and exhaustion and do-overs but also humor and grace, meeting in the middle, and goodness, such a deepening love for the rough edges that are real life.

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Alligator reflection at Florida Aquarium. Yin and Yang, baby.

We’ve found a few things that work for us. I am a morning person and Brett loves to sleep in. On vacations, I don’t mind taking the kids out early on my own in the morning and giving Brett his quiet alone time. And we were fortunate on this trip to have my niece (my first baby love!) with us, so we did morning excursions on our own–finding the best breakfast gems hidden in the city (The Blind Tiger!), taking walks through the neighborhood (Seminole Heights, you sweet charming little chunk of earth!), scouting out the closest park.

Also, I think this is a good place to make a very important declaration. Ready? Here goes: Sweet baby Jesus, there is a doughnut in this world that will take you to other places. Unicorn places. Places that blur your vision and make you smile without knowing you’re smiling. Put Tampa Dough in your GPS and start driving there, no matter how many miles. Just drive. Order the creme brulee doughnut. Shut your eyes when you take your first bite. You will see God. Also the French Toast one is great and so is the maple bacon and okay the S’mores one too. Yes, I tried all four.

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This is what I love about traveling to places even just a little bit far away from home: my taste buds open up. I wake up a little bit more.

To new and unfamiliar….

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Magic that glows, Florida Aquarium

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But also to things I think I know…our comfortable familiar. I love viewing my family from the eyes of a tourist:

That big sister. She’s so caring. Aware. Look at her quietly take in her world. My, what a deep thinker she must be.

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So gentle and patient. An old soul, isn’t she?

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And the one with braids. An eager little learner.

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That wonder, that enthusiasm. I want that!

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Oh, and that little one.

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What a hoot. I bet he keeps his parents on their toes.
But look harder…some spirit that kid has got. My goodness, he’s going to make good use of that in the world, isn’t he?

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And would you look at that dad? He’s  got a story, I’m sure.

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Watch him talk to his kids. Now that’s a feeling. 

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Somewhere in the scope of even a short four-day vacation, I get lost and am found in the magic of the rough but also glittery edges.

The corners where We’re-Losing-It meet We’ve-Found-It.
Where I’m-Sorry kisses I-Forgive-You.
And I’m-Tired hugs I-Could-Do-This-All-Day.

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Home is a beautifully complex noun. And stepping out together with your family–anywhere–is a great way to both solidify and expand what home means.

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What I know to be true:

Home and Family are like Art: Exquisite and limitless and begging to be explored in new ways.

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Have kite, will travel. Curtis Hixon Waterfront Park. 

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Tampa glitter:

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Oxford Exchange…a truly sensory experience for a meal. Shop, drop, eat, and roll.

One thing we’ve figured out: Pick one thing. An aquarium, a zoo, a park, a show, a museum. Just one big thing a day. Keep standards reasonable. Show up and be amused, entertained, inspired by the little things. Stay flexible. It also worked really well this trip to make lunch our big meal out and then stay in and cook dinner at the house we rented (first time using Airbnb–we found the sweetest deal on a family-friendly, character-filled home in a charming neighborhood). The kids did better eating out during the day, and the home environment at night was great for winding down and chill time…with Bob Marley.

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We all loved visiting the Florida Aquarium again…

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…and Glazer Children’s Museum. We stayed until closing.

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Note: I’ve become the worst mom for playing restaurant. I used to be really good at it, but now I feel compelled to say things like “Is this gluten free?” “Could you toast this a little darker?” “Are these tomatoes local?” “Is there MSG in this?” maybe because I never say those things in real life. It confuses the kids and they end up yanking the rubber sandwiches away from me and serving them to someone else. At which point I yell “ONLY TWO STARS IN MY REVIEW!” which only confuses them more.

I behaved like a proper and good mom at the indoor beach though.

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The kids’ favorites?

Most definitely the fountains next to the Children’s Museum…

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…neighborhood walks to Starbucks.

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…and spa night.

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And mama’s favorites?

Watching love.

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Dash finds dead lizards. Always. And talks to them.

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At dawn, we rise. At night, we retreat. And in the middle…we love.

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Happy Monday and Happy World Down Syndrome Day, a celebration of a journey that is really just another kind of vacation.

Filed Under: Family, Travel, Uncategorized 31 Comments

Hup, Two, 3-21!

March 8, 2016 By Kelle

Thank you, thank you friends for getting the 3-21 Pledge off and rolling, helping Ruby’s Rainbow send more kids with Down syndrome to college this year. If you didn’t read yesterday’s post, please go back and read it for the story on why this matters and what Ruby’s Rainbow is doing. Since I’m a visual girl (give me pictures! videos! music that makes me feel!), I’ve got more for you today. Our friend Kyle who works with the Kennedy Center at Vanderbilt University followed us along on our trip last week and donated his time to tell this story with his wonderful photography talents.

And a big thank you to Caroline C., Karen A., Emily–Liam’s Mom and the Block Family–they all donated, shared and got three other people to donate. A full circle pledge! Once you donate $21, you get this colorful little tracking circle that pops up and keeps track of all the pledges that came from your shares.

Again, here’s how the 3-21 Pledge works. World Down Syndrome Awareness Day is March 21–so we have two weeks here.

1. Click here to make a $21 pledge.
2. Pledge to be kind and considerate to people of all abilities (I know you got this one!).
3. Share your pledge with 3 people (or more!) and ask them to do the same.

And Tim, Ruby’s daddy from Ruby’s Rainbow, is the first donor to hit the BLUE LEVEL. That’s like karate black belt! Six degrees of Kevin Bacon but better. That means that someone who Tim shared the pledge with (red) donated and then got someone else to donate (orange)–and THAT person got someone to donate (yellow)–and, that person got someone to donate (green), and wait one more– THAT person got someone to donate (blue)! Isn’t technology grand?!

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And thank you, not only from someone who loves Ruby’s Rainbow and all the students it helps…but from a mama with big dreams for her girl. Nella sends giant virtual hugs to all of you. It takes a village. xo

Filed Under: Uncategorized 10 Comments

Awakening the Sleeping Parts

March 3, 2016 By Kelle

This time last night, I was sitting in a classroom at Vanderbilt University’s Kennedy Center in Nashville, Tennessee while the final minutes played from Shooting Beauty, a documentary about a photographer who begins to redefine beauty when she starts a photography program for people with disabilities. The film was hard to watch at times as it provided an honest and intimate look at how challenging life really is for people with significant disabilities–from their everyday life to their desire to fall in love and have a family just like everyone else. The chairs around me were filled with new friends I had met earlier in the day–students attending Vanderbilt University’s program for individuals with intellectual disabilities–and I knew once the movie was over, our schedule for the trip was completed, and I’d say goodbye to my new friends and head home. Something about the film did me in though, and as it came to a close, I just sat in the dark and cried–could barely pull myself together enough to even rifle through my purse for a Kleenex.

I tried to explain it to my friend Liz later that night. “I couldn’t stop crying, Liz. I don’t even know. It just hit me, you know–how hard and isolating it can be to have a disability. How beautiful it is to find something that makes life better (in the movie, it was photography). Our girls–what they’ll face in life. How lucky I feel to get to be a part of this. How guilty I feel for how much pity I feel. My own prejudices. The responsibility. The opportunity we have to help. It’s just SO MUCH. I don’t even know how to feel, you know? I just–” And then I did that horrible thing I do where, when I can’t find the words, I keep talking rather than stop talking, and it’s really quite awful–the recording of which I’m sure I’d be assigned to listen on repeat if there was a hell and I was there.

The truth is, there are lots of times where I feel completely lost in how to feel about all of this, in how to prepare, in how to parent, in how to process experiences, in how to advocate.

But I always return to what’s never lost–my driving force, my standard against which I weigh all the things–and perhaps it was the word I was trying to find last night when explaining why I cried my way through the documentary.

I just feel love.
In the most overwhelming sense that it consumes me.  For the people in the movie. For kids who just want to fit in. For anyone whose disability challenges what they really want in life. And for Nella. Sweet mother of all things holy, for this girl I love so much.

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Right before I left for Nashville, I popped in the girls’ bedroom to say goodbye. With Nella snuggled in on one side and Lainey tucked in to the other, I told them where I was going.

“Remember Ruby’s mama? Remember what I told you she does? She helps people who have Down syndrome go to college if they want to. Don’t you think that’s awesome? Well we’re going to go visit them and see their classes and talk to them about how much fun they’re having and what they’re learning.” Lainey smiled her shy smile–the one I can predict now for conversations like this–and Nella? Well, she reached up and touched my cheek. Locked her eyes on mine just like she did when she was born–like she knows everything there is to know, even the things I haven’t figured out yet. And then she kissed me….
…and another little part of me I hadn’t realized was sleeping came alive. 

There. That’s it. Those are the words I was looking for. That movie, this week, the people I’ve met on this journey and all their stories I’ve been learning these past six years–they’ve awakened parts of me that were sleeping. And though that awakening brings responsibility and sometimes makes me sad, I promise you it’s far more fulfilling to live fully awake. I want to keep looking for more sticks to stir up all the bioluminescence in the world so it glows as bright as it can be. Pardon me, I just saw The Good Dinosaur, and the firefly scene kind of stuck.

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This morning, after a few days peeking into the future of possibility for Nella, I couldn’t wait to hug her. “Let’s go get Nella early from school,” I told my dad when he picked me up at the airport. That is, of course, after he made fun of my thrifted suitcase. I was holding my suitcase, waiting for him to pull up, and–not noticing he was already there–I looked down at my phone to see a text from him: “Maria von Trapp called. She wants her suitcase back.”

It feels good be home, a little more awake than when I left. We have a lot of work to do, and next week I’ll tell you all about the trip and how you can play a very important role in awakening the sleeping parts.

You know what was in this girl’s school bag last night?

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A paper with her new site word…CAN. She had to circle all the places she saw CAN on the paper, and they were everywhere. So many circles. CAN CAN CAN CAN CAN.

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How much we can do when we’re fully awake. Now go get a cup of coffee. Happy Thursday, friends. Thanks for tagging along.

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Filed Under: Uncategorized 35 Comments

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