Enjoying the Small Things

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Nella and Dash Now: The Changing Roles of Siblings in Special Needs Relationships

May 6, 2019 By Kelle

On Dash’s first day of preschool four years ago, Nella led the way. She buckled his seat belt, tucked his lunch box in his tote bag and guided him to his classroom, kitty-corner from hers. He was the freshman, she was the senior, and she took great pride in knowing the ropes. He needed her, and she loved that he needed her.

For six years, we’ve coasted in this wonderland of perfect sibling roles–of Knowing Older Sister leads Learning Younger Brother and everything good that comes with it. Dash likes to be the knowing one and has no problem trying to take boss status from Lainey, but Nella? He lets her lead.

This year, Nella again led Dash into his new school, into the same kindergarten classroom where she once had a seat sack with her name on it. She’s known every rhyme in the poetry notebook he’s brought home every Friday because she learned the same ones, and she’s quizzed him on sight words from the same chart she learned from.

But now that we are rounding the end of the year, it’s different. At some point this year, things began to shift as he sped through lessons and quickly mastered skills that she is still grasping. He’s a full-blown reader now and doesn’t need her help. He corrects her when she doesn’t pronounce a word right and jumps to finish a sentence she’s reading if it’s taking her longer than “Dash Time” which, frankly, isn’t a fair standard for anyone. Dash sees Nella as nothing more than his sister and playmate and, as every good brother should do, pushes her, believes in her and calls her out when she’s not performing to the level of his expectations for her. We love that and think it’s good for Nella, but there are holes in this method–like when he chastised her for her handwriting last week when they were comparing sentences they wrote together. “Nella, that’s so bad. Why do you write sloppy?” I saw her little pride bubble deflate a little as she quickly tucked her notebook away. From the rear view mirror on another day last week, I watched as Dash and Nella both pulled their art projects from their backpacks after they climbed in the back seat, so proud to show me; and I winced as Nella quickly pushed hers back into her bag once she saw Dash’s.

We’ve never minded the patient approach to supporting her beautiful slow and steady, deliberate path to academic learning; but we have admitted that the hardest thing about this path would be if she is discouraged in recognizing that it takes her a little longer or that her work looks a little different. For nine years, we’ve helped her build strong emotional muscles, stacked her with confidence, praised her uniqueness, cushioned the reality of “It takes you longer, and that’s okay!” with so many spoken examples of our own slower pace or delayed mastery of a skill coupled with great acceptance of ourselves: “Mommy takes a long time to read a book, and that’s okay–I don’t want to rush!” “Daddy has messy handwriting, but he keeps writing! It’s his trademark and he’s proud of it!” We subconsciously eat, sleep and breathe self acceptance and love for what makes us different in this home, hoping our kids–especially Nella–will absorb it by osmosis.

Nella has proven she can hold her own. It takes such grace and confidence to keep learning, keep reading, keep showing up in a classroom when you’re working on skills your peers have mastered long ago; but she does it, and she does it well. The one person’s compatibility that has meant the most to her though, is her brother’s; and as he surpasses her in math and reading skills, I’ll be honest in admitting that it’s sad to see their roles shift.

Here’s what I know though: We are good at creatively embracing a parenting challenge. We’ve been so fortunate to coast through the past couple of years without any major challenges with Nella. We got this! The other night, Brett and I talked about some of the things we are noticing lately, and I love how quickly our conversation shifted from “that’s sad” to “I have an idea!” We are naturally equipped with instincts to swoop in with solutions. Within ten minutes, we had a game plan for how we are going to support our family through these changes–how we can educate Dash to understand Nella’s needs more, how we can help Nella lean in to Dash’s growth and use it to her advantage, and how we can be better about identifying Nella’s unique strengths that her siblings don’t have and letting her shine in those moments. We are motivated and thankful for this nudge and are already noticing things getting better.

In a well-timed moment at the end of the week last week, right after Brett and I had talked about some of the changes we are noticing and how we basically wanted Nella to have some glorious moment of well-earned success recognized (you know–podium, trophy, cheering), we sat on our lanai at sunset, watching the kids play in the pool. I was snapping a few pictures, cautioning them to calm down a little because “someone’s going to lose an eye” when sure enough, Dash got hurt. His cries are a bat signal for Nella, and our superhero did what she does best–she ran to comfort. She is better at this than anyone. She is the senior, we are her freshmen. She scooped him right off his feet and held him like a baby, knowing he’d be weightless in the water.

He milked it, and she loved it, staying close to him and whispering things we couldn’t hear in his ear until he decided he had his fill of her love and attention. I asked him if he needed a Band-Aid, and he ignored me. He wanted her, not me.

She will always be his big sister and teach him the things she does better than anyone else. He doesn’t know yet how lucky he is to have a golden ticket into the course she’s teaching, but he will soon.

It’s been a rough weekend. Our sweet Latte is suddenly dwindling fast, and we may have to put her down. There have been so many tears the past few days. The other night, Nella climbed in bed with Lainey and patted her back as she cried. Over and over, she repeated, “I love you, Lainey.” She’s bringing so much light and compassion to this whole situation, and we all recognize how important her special gifts are.

Oh, and that art project she did? It’s perfect.

Filed Under: Down Syndrome Tagged With: Down syndrome 30 Comments

My Most Used Apps

April 29, 2019 By Kelle

Happy Monday! In keeping with spring cleaning trends, I did a little cleanup on my phone this weekend, deleting and organizing photos and apps, and let me tell you–it was a job. I had gone way too long since the last cleanup which I won’t let happen again. Besides the thousands of photos and screenshots I had never transferred to my computer, I had pages of random apps scattered everywhere. I did a little Kon Mari on my app clutter and let most of them go (“No, weird car wash game I do not remember downloading, you do not bring me joy.”) and then structured my home screen into organized folders. There are several different ways to organize apps (I found this and this helpful), but I ended up arranging them into the following folders: Photography (anything photo and video related), Social Media, Shopping (Amazon, Target, Etsy, Shipt, etc.), Entertainment (Audible, Pandora, Netflix, fave podcasts, etc.), Wellness (running app, gym classes, meditation, etc.), Navigation (Waze, Uber, maps, my car app), Business (Dropbox, Google docs, my bank, etc.), Kids (anything kid related including games), and Food (Bite Squad, Uber Eats, etc.), and then I left mail, calendar and several other apps I haven’t quite figured out what to do with dangling. A little more work to do, but it’s so much better! I thought I’d use the opportunity to share some of my favorite apps though. Most of these are photo related, but I included a few kids ones we love as well.

A Color Story
I do most of my photo editing (when I’m not using Lightroom on my desktop) in Color Story and absolutely love the way it’s organized and what it has to offer. There are numerous filler packs (and frequently added new ones) you can buy which are really great, but the regular adjustment tools are just as good. You can also add fun effects like sun flares, bokeh, texture (to give photos a vintage look with grain) and twinkle lights.

Word Swag
Word Swag is a fun way to create photos for Instagram stories with text options beyond the few that Instagram offers. You can capture more editorial looking frames with magazine-like captions and titles.

8mm
Every time I share an 8mm video, I get asked what app I used. It’s a retro film camera that captures old-timey video footage with that grainy, flickery look that conjures all the nostalgic feels. It’s great if you’re adding music to create vacation video montages that you want to sob watching someday.

Kira Kira
I don’t use this one a lot, but it’s really fun for certain occasions. Kira Kira records both regular photos or video with a twinkle effect around anything that would naturally sparkle–glass, metal, diamonds, etc. Posting a photo of jewelry, Christmas lights, champagne glasses lined up at your brunch? You definitely want to use Kira Kira.

Insight Timer
The best meditation app! There are literally thousands of insights and mediations to choose from from guided meditations to help you fall asleep to short morning affirmations to get your day started. And it’s free! There’s also chants, music and lectures from renowned spiritual leaders all over the world.

Nike Run Club
I used Nike Run Club for all my runs. It tracks miles and courses, times and saves your runs, syncs your funs to Spotify or whatever playlist you choose and also offers guided runs, coaches, support and connection with other runners. I love the celebrity voices that pipe in to cheer you on as you run.

Kids

Our Pact and Zift
We have loved the OurPact parental control app, but last year Apple changed some policy that made geofencing, location tracking and time allowances only available on Android devices for this app, so we are switching to Zift for managing Lainey’s phone (super bummed because I LOVE the setup of OurPact. However, OurPact can still manage or block any iOS app. These apps are NECESSARY for responsible phone use for kids. You can set up screen usage times and even usage for particular apps so that they shut down when time is reached (you don’t have to be the bad guy!). They also link your phone to your kid’s phone so you can manage apps, usage and see where they are.

Endless Reader
We’ve been using Endless Alphabet and Endless Reader since Nella was a toddler, and they are still so great for word recognition and learning to read. I swear Nella learned all her letters early from this app as well as what sounds they make.

Toca Boca
It works for all three of my kids and great for those in-a-pinch times when we’re stuck waiting for something in some boring place or the kids are losing it. All the Toca Boca apps are open-ended play games, and I find myself even being delightfully entertained by them.

Did I miss a life-changing app? Do share!

Filed Under: Uncategorized 4 Comments

7 Easy, Inexpensive Hostess Gifts

April 25, 2019 By Kelle

On our sister/cousin/family text thread this week, we were discussing things that make us feel like we have our shit together–“feel like” being the operative phrase here because, admittedly, we’re daily falling apart. For my sister, it’s matching pajamas–J Crew’s classic button-up, to be exact. For my cousin, it’s prepping meals ahead of time. Other cousin–freshly painted nails. Mine? Among others, bringing a hostess gift to someone’s house makes me feel like I’m a poodle, not a wolf. People who bring nice hostess gifts certainly don’t have backseats covered in important school papers they never read, stale Cheetos from two weeks ago and a broken hanger from God knows where. I’m not saying I’m always good at remembering the hostess gifts, but when I do, it’s an invigorating Poodle moment. My friend Meredith is so good with hostess gifts–nothing over the top, but a quick handover of a simple gift when she drops her daughter off, before she turns to leave. The orchid she brought me a few months ago is still going strong on my windowsill. Last week’s hydrangeas held us through Easter. Another friend of mine is so good at hostess gifts, she has a cabinet dedicated to storing small gifts that can work for any hostess–candles, napkin rings, fancy wine bags, her favorite scone mix.

In my lifelong effort to bring more Poodle to my instinctive Wolf-ness,  I have gathered seven easy, thoughtful hostess gifts that don’t cost much and can work for anyone at any time.

1. Homesick Candle, Mini – A fun way to recognize your recipient if you know where they’re from. Or, you can gift your own state or “New Home” scent for a housewarming gift.

2. Tea towel and olive wood ladle  (Hearth & Hand has the loveliest 2-pack of flour sack towels)

3. A small house plant in an artsy planter (I love this one or this one or this beautiful tabletop terrarium)

4. A pretty mug with a pouch of your favorite coffee or tea inside

5. A homemade all purpose cleaner you made, in an amber bottle with a handwritten label

6. A pair of earrings packaged on a photo you took (the stud earrings here were only $4.99 each at World Market and photos are the small square prints from Social Print Studio). I love this one–so simple and inexpensive and yet personal and thoughtful.

7. The “Crappy Day” grab bag: a mini bottle of wine/champagne (World Market has so many good ones to choose from) with a good chocolate bar & a package of bath salts

 

Filed Under: Parties 4 Comments

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