Enjoying the Small Things

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The Bus

February 6, 2010 By Kelle

When a bus hits you and you’re lying in the street, it might take you a little while before you can stand up again.
And sometimes, when you go to stand up, your legs won’t come with you…because, well because they got hit by a bus.
So, you lie back down and absorb the feeling of that pavement and feel the pain a bit longer. But then you try again. Eventually, the feeling returns to your legs…even if it’s temporary.

My legs had feeling today…tire tracks, yes. But feeling.

We went out to lunch and people noticed my hospital bracelet. Marveled at the little bootied feet that dangled out of the sling. Asked to peek past the fabric that huddled her close to my chest. Smiled when they saw her. “Congratulations.”

Today, my beautiful two-year-old sang happy songs in the car. Loud and free.

And she propped her pudgy feet onto the seat in front of her and curled her toes, just like she always does, and it made me smile.

Today, we threw pennies into the fountain and made wishes…for simple things.

And doused ourselves in dirty fountain water because what Daddy doesn’t know won’t hurt him.

Today, we read stories in our room, amid laundry baskets and taped up diapers on the floor that didn’t quite make it to the trash can.

(Click here to see the big girl reading…and push me out of the room when I invaded.)

Today, we bumped into friends in a parking lot and huddled forever to talk. And laugh. And smooch on babies…my babies. Like the world moves on flawlessly while it waits for us to jump back in. But laughing is always good. My girls will always hear me laugh…I promise them that.

And tonight, when the day was over…a real sleepover with friends and popcorn and movies in bed.

And the same candles from the delivery room flicker once again. I’ve turned them on every night since and leave them on through the night…and the same batteries have yet to go out.

I want to give my girls the world.

I want to grant them a life without pain or sorrow. I’m not in control of that, but I can love…and my ability to love just grew a trillion-fold this last week. I love them so much, it hurts.

And, once again, I have to say I am in awe of the response from beautiful, thoughtful, amazing people Nella’s story has garnered. There are so many heart-warming things you’ve said I would love to repeat here…still taking it all in, but tonight, one that stood out that made that big bad bus seem further away…one that erased a few tire tracks…one that made me hug this girl a little tighter…

…from a Daddy:
“Thank you for having the courage to share your innermost thoughts and sharing Nella with your readers. The world became a better place the day she was born. When Nella is older, please let her know that she has inspired this reader to remember what’s important in life, be a better man, and be the best Daddy he can be to his own little girl.”

I whispered that to her…I thought she should know up front. She’s going to do big, big things, you know.

And so is every child, regardless of chromosomes…if we show them the way.

I have two girls. Two beautiful girls. How cool is that?

Our sleepover awaits.
I smell…laughter.
And I hear the distant sound of a bus…driving away, exhaust trailing behind it…lingering a bit, but promising to fade away.

Go away, bus.

Filed Under: Coping, Designer Genes, Mamahood 204 Comments

The Same

February 4, 2010 By Kelle

I will not always write about ‘what happened’ to us.
And I will soon not think of it as what happened to us…but for us. In fact, I’m already there.
I will move on.
But, for now…it is therapy. To write these feelings. To take them someplace safe.
My dad says friends are asking him, “how is she really doing?”
And the truth is…just fine.
I cry every day still.
And there are times I think it’s all a dream.
But, it’s not.
Perhaps it’s not quite coming to grips with things yet…or perhaps it will always be this way…but I fear becoming known as ‘that Down Syndrome family.’
…because this does not define us. This does not define her.
It’s just I need a little time to stay here for awhile.
But, eventually…I will continue to write about what I’ve always written…simply life. Our beautiful life.

We are the same family. …who happen to have this beautiful child who maybe isn’t quite like the others, but then again…she so is.



She’s so tiny…just like Lainey.
And she growls softly in her sleep like a little cub.
She loves when we hold both of her hands, and she falls into a relaxed trance when we hum softly in her ear.

The “It’s a Girl” balloons in the house are slowly deflating. The fragile edges of the flower petals are browning. And the monumental moment of the beauty of her birth is stretching further and further from where I can still touch it…taste it’s sacredness. But, you know when I can feel it? At night. When it’s dark and all are asleep except her and I. She sleeps with me…and our hearts beat together as she lies on my chest and I hold her tiny hands. And I talk to her…and, I swear, she understands.

I bring her face to mine until we are breathing each others’ breaths, and oh, is it beautiful. I look forward to night because night is finally beautiful again.

And last night, I leaned over to my blonde little wisp of a girl who was fast asleep with a puppy ear gripped between her fingers…and I cried as I whispered in her ear just how very proud I am of her. I told her I couldn’t have done this without her…and that she means so much more to me than she ever has before. I worry she will get lost in this tangled shuffle of emotions…but then I watch her and realize, we’ve done something so right. Because she is not lost…she’s right there with me all along, smiling, showing me how this is supposed be done…leading the way.

I don’t think I’ve changed a single diaper without her help yet. In fact, she apparently tried one without my help tonight, but thankfully I noticed a cock-eyed onesie, a tiny leg unleashed from some jammies and a half-taped diaper before a catastrophe. I looked up to big guilty eyes and, before I even needed to ask, she admitted…”me did it.” I love messed-up pronouns.

With Brett gone, I am truly breathing in the beauty of being a mama of two girls while simultaneously experimenting with seeing just how big my laundry pile can grow before I have to wash it. Because I seriously don’t care. Clean underwear are overated if you ask me.

I told my friend the other day that this whole thing has completely changed me. I even went so far to say I didn’t care about buying another pair of shoes again in my entire life. And I like shoes. She told me it would come back…that I will always like shoes because that’s just how I am.

Yesterday, I took my girls out just for a bit…for fresh air. For a sense of normalcy. And I ventured in a shoe store…just to see. I didn’t need any shoes and knew I wouldn’t buy any…just tried some on. And you know what? I still like shoes.

Because this is who we are. We are a normal family who do normal things. We live life to its fullest, and now…even more so.

So, as fitting, just like old times, tonight…
…to the lake we went.

Lainey joined by her friend, and I by mine…and Nella slung to my chest, hanging just about where she resided a month or so ago, the last time we traveled here.

We spread a blanket over the stiff grass, unpacked watermelon and crackers and cold grapes from the picnic basket…and watched as the sun set behind the stretch of trees.

…and Nella basked in the evening light and listened as her sister laughed and ran laps along the lake…just like she will someday.

Evening has us huddled for another girls night accompanied by a crackling fire…and much happiness.

We are the same family. But better.

Thank you, Thank you…from the bottom of my heart…for your beautiful comments. I read every one, am touched by every one, and know more now that there is so much more beauty in this world than I ever allowed myself to see. Thank you.

Filed Under: Coping, Designer Genes, Mamahood 194 Comments

Grief…and Learning to Ride Again.

February 1, 2010 By Kelle

Today is gray and rainy. I knew it would be a harder day the moment I woke up despite my attempts to turn it around. I will always try and sqeeze the bitter lemons into sweet lemonade, but sometimes, no matter how many scoops of sugar you add, you taste your concoction and it’s crap. I have my girls…and that’s what matters. Crappy days are inevitable.

I scrolled down on my blog today and reread some old entries…when I was pregnant and reading “you’re gunna be a big sister” books to Lainey. It hit me hard again…even my header photo. And my mom leaves tomorrow. And Brett heads to Chicago for ten days, and I already miss him so much, my heart aches. I love him so much more through all of this…I didn’t know it was possible.

We got our chromosome tests back today. I was expecting the call all day, and I knew full well what we would be told, but my throat still constricted, my eyes still welled and I felt that bottoming out of my stomach I felt so much of last week nonetheless.

Dr. Foley gave it easy…”Sweet ‘Lil Nella has Down Syndrome…just like we thought.”

I liked the “Sweet ‘Lil” part. They were like spoonfuls of sugar in my crappy lemonade today.

She is sweet & ‘lil.

Many have wondered or assumed this would be easier if we found out early. I opted not to have the Triple Marker test so many do to rule out ‘abnormalities.’ Her heart was perfect. And, regardless, A: We wouldn’t have done anything ANY differently had we found out, and B: I wouldn’t have changed a thing about the way this happened. I wouldn’t have wanted to know.

I am a person of hypersensitive emotions. I love like love is a drug and I am an addict, and I grieve deep, concentrated grief. It’s who I am. I know if I found out earlier, I would have put up a barrier. I know I would have been depressed for weeks. I know I wouldn’t have sucked the joy out of my beautiful pregnancy like I did, and that in itself would have been a terrible loss.

I needed to find out the way I did…to grieve hard and heavy. I needed to hear the news the moment she was handed in my arms so that my love at the sight of her could help heal my broken heart. She fixed me.

But, like every other fix, sometimes things temporarily break down again, and I found myself shaking a bit today. It’s not her ever. She is not a disappointment in any way, shape or form. In one week, my soul–the one that has Lainey all carved in her spot–has been chiseled away to make room for my sweet Nella–and she fits perfectly…right in her spot–and they both are locked there to stay.

It’s ideals. Dreams. Expectations I had for life. I keep telling myself that our old life didn’t die…it’s just different. Erase and Replace. Every day, there is something I think of and, slowly, I erase the old memories and replace them with new ones. Different ones. Good ones. And you know what? I cannot wait to take our new family to Isle of Capri. I am dreaming of tiny little swimsuits and Nella-izing the place like Lainey already has. I want her footprints in those sands, the grooves of her walker wheels carved into the old wood floors, a dollar bill with her name on it stapled to the beams above the bar where others have gathered under the thatched palm roof. There are such happy days ahead. And that’s not just sugar talkin’…those are our lemons. And, they are sweet.

So, real life has begun. A new life. It’s like learning to ride a bike again. I fell off a couple times today and the damn chain breaks loose every once and awhile, but it feels good to ride. To pedal slowly on this steep incline. It’s a hard ride, but I know I will find beauty…in the flowers on the side of the path, in the breeze that still exists. The incline will even out soon, I know. I’m not alone on this bike. I’ve got my babies strapped to me. And then there’s Brett and the boys who ride along…and, well…hell, last time I looked back, there’s like a trillion of you all attached. World’s Longest Tandem Bicycle. …that’s what we’re riding.

There’s beauty in our new real life.

~ The introduction of our new girl to the waiting hearts of friends at a ‘Welcome to the World’ brunch Sunday hosted by my friend, Heidi (everyone needs a Heidi in their life. I’m lucky I found mine).

Friends, when you love my children…you are loving me. Thank you.

~ Our first outing alone…to Costco to pick up some pictures. And my big girl huddled in the back over my little girl, protecting her, loving her while I pushed the cart.

I picked up the pictures and then felt all Supermommish and ventured further in the store to challenge myself. Maybe some papertowel. Some cheese. I can do this. But then I saw crowds of people and long lines…and I screeched the crooked wheels of our cart into a 180 and got the hell out of there. I can be Supermom another day. Not today.

~ We give baths and change diapers.

…and do loads and loads of laundry. Tiny little pee-stained laundry that seems to multiply like rabbits. We clean and cook and scrape up dried play-doh off the couch. Because that’s what every mom does.

~ We take breaks to soak up the most important thing we have…our family. Last night, we huddled over candlelight on the big coffee table…all of us…and played Yatzee. Brett kicks our butt every time, but it doesn’t matter. It feels good to be together…to laugh as I attempt a full house once again only to deal a crappy roll and bottom out on the scoreboard every time. I held my sleepy girl and watched as Lainey fought for the dice between every player, demanding, “mine turn.”

~ We nurse our babies…she figured it out…I knew she would.

And, for the record, Nella “gave” Lainey a new baby at the hospital when Lainey came to meet her. It was a beautiful moment–cameras flashing, tears streaming. She opened the present and smiled at the sight of the new baby. I kneeled next to her and whispered, “what are you going to name the baby?” The videotape rolled as the room grew quiet and we all waited her response. I expected something beautiful. Something profound. And she replied with…
…Hot Tub.
You can actually hear on the video this quiet pause and then someone pipes up with, “Did she just say HOT TUB???” And she did. Been callin’ her that ever since.

~ We paint faces once again. And it seemed appropriate…today, on her own, she asked to be…
…a bunny.

~ We move on. In our Chinese food delivery the other night, I dug for the fortune cookies, expecting something beautiful. Certainly, this week calls for a beautiful fortune. You know what I got? Some crap about my “executive abilities.” So, I dug for another only to get some confusing line about some “iron constitution”…and I had to laugh. This is real life. Our fortunes will not always be beautiful. Things don’t always make sense. But we move on.

Lainey’s cookie held the last fortune. And it said, “You have a lively family.” And then my mom broke a dish (for the third time this week).

Yes, we have a lively family. A lively, beautiful family that will move on with time. We have to…’cuz all these people are pedaling our tandem bike and we have no choice. We’ll let you pedal for us for now and when we’re ready, we’ll stretch our legs back down and cycle through those rhythmic turns. We’ll learn to ride again.

…these beautiful little souls we created make it pretty easy…

Totally…Madly…Deeply…in Love. ~k

Filed Under: Coping, Designer Genes, Friends 125 Comments

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