Enjoying the Small Things

Enjoying the Small Things

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Music & Humor

February 9, 2010 By Kelle

I found a new anthem. Or twelve.
I’ve always been moved by music and it is in times like these, I run to find solace in compositions that deeply move me, rhythms that inspire me, grooves that rock me to the core. And we dance. Like we did way back when…and it healed then too.
I wrote a paper on music in college and how it drives us. Like that time in college I blew $150 at Forever 21 because U2 was blaring in the store and it tricked me into thinking I had the $150 to spend or that I looked hot in cheap, stretchy cotton.
So, I’ve been listening to this huge playlist of soul-healing tunes. And, I admit, The Black Eyed Peas have strangely brought peace. Because “Tonight’s Gunna Be a Good Night” makes me think it is gunna be a good night. And we dance and laugh and tell ourselves that our life is simply fabulous. Because it is.

And when we’re not dancing, we are laughing. Because humor is equally healing. I am beginning to remember all the funny things that happened at the hospital that helped bring comic relief when it was so needed. Like the fact that I used the frozen pads the nurses gave me for my stitches for my eyes instead…because they were so swollen and sore from crying. So, every time the nursing aide came to interrupt my sleep to take my temp, she was met with a forlorn mother, sleeping with her face covered in maxi pads.

So it is, with moving melodies and maxi pad memories, we are plunking along…and all the things I had looked forward to have been waiting. Until now.

I made Valentine cookies with my girls today. My two girls. And we had So. Much. Fun.

The littlest Valentine, swaddled in pink, slept soundly on the table while my bigger Valentine tediously rolled and floured and frosted.

My cousin-slash-soul-sister, Joann, is here from Michigan. It’s been wonderful having family down here and each has served their purpose. My sister providing initial scrape-her-off-the-floor duty, my mom and dad home-after-the-battle support and Joann coming later for “aftershock.” But, the aftershock has instead been this incredibly enjoyable time of holding babies and reading books and drinking coffee and making fires and watching movies…exactly what we should be doing after a baby comes home. Because it is a very happy time indeed.

I am not kidding when I say this baby has not been put down since she’s been home from the hospital. We hold her at every moment…squish her cheeks, nuzzle her neck, kiss her feet…and at night, I am sandwiched between my two girls in our big, beautiful family bed. Smothered Love…just how we like it.

Joann brought Lainey a new shirt…so completely appropriate for our puppy-lovin’ girl.

Nella never cries but for a tiny squawk here and there, but there is definitely a significant pouty lip when she gets cold.

It’s funny…even as I write this, I realize how perfectly wonderful and normal our life still is now. I am learning to stop fast-forwarding. To turn off “sad” when it comes. To shift my paradigm and direct my mind where it needs to go. To listen to music and laugh and pour myself into what makes me happy…being with my girls and taking pictures and writing about the little things of life that piece together this greater picture of beauty. I will allow myself my fears and sadness later as they reoccur. But, for now…I need beauty.

(Nella’s first sunset tonight)

I suppose it’s cliche to say “life is what you make it,” but it truly is. And here, tonight, I am inspired to continue to do what we know best…to suck the marrow out of life.

Bad days will come. Laundry will multiply. Frozen maxi pads may certainly find their way back to my sad and swollen eyes. But tonight…life is beautiful.

Filed Under: Coping, Designer Genes, Enjoying, Holiday 311 Comments

The Bus

February 6, 2010 By Kelle

When a bus hits you and you’re lying in the street, it might take you a little while before you can stand up again.
And sometimes, when you go to stand up, your legs won’t come with you…because, well because they got hit by a bus.
So, you lie back down and absorb the feeling of that pavement and feel the pain a bit longer. But then you try again. Eventually, the feeling returns to your legs…even if it’s temporary.

My legs had feeling today…tire tracks, yes. But feeling.

We went out to lunch and people noticed my hospital bracelet. Marveled at the little bootied feet that dangled out of the sling. Asked to peek past the fabric that huddled her close to my chest. Smiled when they saw her. “Congratulations.”

Today, my beautiful two-year-old sang happy songs in the car. Loud and free.

And she propped her pudgy feet onto the seat in front of her and curled her toes, just like she always does, and it made me smile.

Today, we threw pennies into the fountain and made wishes…for simple things.

And doused ourselves in dirty fountain water because what Daddy doesn’t know won’t hurt him.

Today, we read stories in our room, amid laundry baskets and taped up diapers on the floor that didn’t quite make it to the trash can.

(Click here to see the big girl reading…and push me out of the room when I invaded.)

Today, we bumped into friends in a parking lot and huddled forever to talk. And laugh. And smooch on babies…my babies. Like the world moves on flawlessly while it waits for us to jump back in. But laughing is always good. My girls will always hear me laugh…I promise them that.

And tonight, when the day was over…a real sleepover with friends and popcorn and movies in bed.

And the same candles from the delivery room flicker once again. I’ve turned them on every night since and leave them on through the night…and the same batteries have yet to go out.

I want to give my girls the world.

I want to grant them a life without pain or sorrow. I’m not in control of that, but I can love…and my ability to love just grew a trillion-fold this last week. I love them so much, it hurts.

And, once again, I have to say I am in awe of the response from beautiful, thoughtful, amazing people Nella’s story has garnered. There are so many heart-warming things you’ve said I would love to repeat here…still taking it all in, but tonight, one that stood out that made that big bad bus seem further away…one that erased a few tire tracks…one that made me hug this girl a little tighter…

…from a Daddy:
“Thank you for having the courage to share your innermost thoughts and sharing Nella with your readers. The world became a better place the day she was born. When Nella is older, please let her know that she has inspired this reader to remember what’s important in life, be a better man, and be the best Daddy he can be to his own little girl.”

I whispered that to her…I thought she should know up front. She’s going to do big, big things, you know.

And so is every child, regardless of chromosomes…if we show them the way.

I have two girls. Two beautiful girls. How cool is that?

Our sleepover awaits.
I smell…laughter.
And I hear the distant sound of a bus…driving away, exhaust trailing behind it…lingering a bit, but promising to fade away.

Go away, bus.

Filed Under: Coping, Designer Genes, Mamahood 204 Comments

The Same

February 4, 2010 By Kelle

I will not always write about ‘what happened’ to us.
And I will soon not think of it as what happened to us…but for us. In fact, I’m already there.
I will move on.
But, for now…it is therapy. To write these feelings. To take them someplace safe.
My dad says friends are asking him, “how is she really doing?”
And the truth is…just fine.
I cry every day still.
And there are times I think it’s all a dream.
But, it’s not.
Perhaps it’s not quite coming to grips with things yet…or perhaps it will always be this way…but I fear becoming known as ‘that Down Syndrome family.’
…because this does not define us. This does not define her.
It’s just I need a little time to stay here for awhile.
But, eventually…I will continue to write about what I’ve always written…simply life. Our beautiful life.

We are the same family. …who happen to have this beautiful child who maybe isn’t quite like the others, but then again…she so is.



She’s so tiny…just like Lainey.
And she growls softly in her sleep like a little cub.
She loves when we hold both of her hands, and she falls into a relaxed trance when we hum softly in her ear.

The “It’s a Girl” balloons in the house are slowly deflating. The fragile edges of the flower petals are browning. And the monumental moment of the beauty of her birth is stretching further and further from where I can still touch it…taste it’s sacredness. But, you know when I can feel it? At night. When it’s dark and all are asleep except her and I. She sleeps with me…and our hearts beat together as she lies on my chest and I hold her tiny hands. And I talk to her…and, I swear, she understands.

I bring her face to mine until we are breathing each others’ breaths, and oh, is it beautiful. I look forward to night because night is finally beautiful again.

And last night, I leaned over to my blonde little wisp of a girl who was fast asleep with a puppy ear gripped between her fingers…and I cried as I whispered in her ear just how very proud I am of her. I told her I couldn’t have done this without her…and that she means so much more to me than she ever has before. I worry she will get lost in this tangled shuffle of emotions…but then I watch her and realize, we’ve done something so right. Because she is not lost…she’s right there with me all along, smiling, showing me how this is supposed be done…leading the way.

I don’t think I’ve changed a single diaper without her help yet. In fact, she apparently tried one without my help tonight, but thankfully I noticed a cock-eyed onesie, a tiny leg unleashed from some jammies and a half-taped diaper before a catastrophe. I looked up to big guilty eyes and, before I even needed to ask, she admitted…”me did it.” I love messed-up pronouns.

With Brett gone, I am truly breathing in the beauty of being a mama of two girls while simultaneously experimenting with seeing just how big my laundry pile can grow before I have to wash it. Because I seriously don’t care. Clean underwear are overated if you ask me.

I told my friend the other day that this whole thing has completely changed me. I even went so far to say I didn’t care about buying another pair of shoes again in my entire life. And I like shoes. She told me it would come back…that I will always like shoes because that’s just how I am.

Yesterday, I took my girls out just for a bit…for fresh air. For a sense of normalcy. And I ventured in a shoe store…just to see. I didn’t need any shoes and knew I wouldn’t buy any…just tried some on. And you know what? I still like shoes.

Because this is who we are. We are a normal family who do normal things. We live life to its fullest, and now…even more so.

So, as fitting, just like old times, tonight…
…to the lake we went.

Lainey joined by her friend, and I by mine…and Nella slung to my chest, hanging just about where she resided a month or so ago, the last time we traveled here.

We spread a blanket over the stiff grass, unpacked watermelon and crackers and cold grapes from the picnic basket…and watched as the sun set behind the stretch of trees.

…and Nella basked in the evening light and listened as her sister laughed and ran laps along the lake…just like she will someday.

Evening has us huddled for another girls night accompanied by a crackling fire…and much happiness.

We are the same family. But better.

Thank you, Thank you…from the bottom of my heart…for your beautiful comments. I read every one, am touched by every one, and know more now that there is so much more beauty in this world than I ever allowed myself to see. Thank you.

Filed Under: Coping, Designer Genes, Mamahood 194 Comments

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